Family 2 Family Resources
With the Internet, families of children with special health care needs can have a wealth of helpful information and materials at the click of a mouse.
Exceptional Children’s Assistance Center
ECAC is North Carolina’s Parent Center and is committed to improving the lives and education of ALL children. Established in 1983, ECAC offers a variety of projects and services designed to meet the needs of NC parents, families, students, educators, and other professionals.
Champions for Inclusive Communities
ChampionsInC, located in Logan, Utah, is a national center designed to support communities in organizing services for families of children and youth with special health care needs.
Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities through a national network that provides families with tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families and serve as a trusted resource on health care.
PACER Center is a parent training and information center for families of children and youth with all disabilities from birth through 21 years old. Located in Minneapolis, it serves families across the nation, as well as those in Minnesota.
The Office of Minority Health
The mission of the Office of Minority Health (OMH) is to improve and protect the health of racial and ethnic minority populations through the development of health policies and programs that will eliminate health disparities. OMH was established in 1986 by the U.S. Department of Health and Human Services (HHS).
Maternal and Child Health Bureau (http://mchb.hrsa.gov)
A bureau of the Health Resources and Services Administration, U.S. Department of Health and Human Services, the Maternal and Child Health Bureau was established as the Children's Bureau in 1912. In 1935, the U.S. Congress enacted Title V of the Social Security Act, which authorized the Maternal and Child Health Services programs and provided a foundation and structure for assuring the health of American mothers and children.
The National Survey of Children with Special Health Care Needs, Chartbook 2005-2006
Children with special health care needs (CSHCN) are defined by the Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau (MCHB) as: “...those who have or are at increased risk for a chronic physical, developmental, behavioral, or emotional condition and who also require health and related services of a type or amount beyond that required by children generally.” This survey, sponsored by HRSA’s MCHB and carried out by the Centers for Disease Control and Prevention’s National Center for Health Statistics, provides detailed information on the prevalence of CSHCN in the nation and in each state.
Children’s Medical Program, Mississippi State Department of Health
CMP provides medical and surgical care to children with chronic or disabling conditions. This service is available to state residents up to 20 years of age who qualify based on family income, family size, and estimated cost of treatment. Conditions covered include spina bifida, cerebral palsy, cleft palate, seizure disorders, cystic fibrosis, sickle cell anemia, hemophilia, hydrocephalus, orthopedic problems (other than from accidents), congenital heart problems requiring surgery, and intestinal or urinary defects requiring surgery.
LIFE of Mississippi, Inc.
Living Independence for Everyone (LIFE) is a center for independent living under Title VII, Part C of the Rehabilitation Act. A non-profit organization dedicated to enhancing the lives of individuals with significant disabilities in Mississippi, LIFE has been in existence since October of 1993 and has provided core independent living services to more than 30,000 individuals with disabilities throughout the state.