MACSS Services and Information for Providers

Developmental Evaluation Services and Information

Pediatric Evaluation and Developmental Services (PEDS) - PEDS is a comprehensive diagnostic developmental evaluation and intervention program .  Services offered include diagnostic evaluations for autism spectrum disorder and other developmental delays or disabilities. 

Diagnostic Evaluation Options for Autism Spectrum Disorders - This page provides a brief list of diagnostic evaluation options in or near Mississippi for children suspected of having an autism spectrum disorder. 

Screening and Medical Home Resources

Why screen for general developmental delays?

Early detection of developmental disorders is critical to outcomes, leads to specific therapeutic interventions and is a main  function of the primary care medical home.  Developmental surveillance is recommended at every well-child visit with standardized screening tests recommended to be administered at the 9, 18, and the 24/30-month visits.   This policy statement from the American Academy of Pediatrics provides an algorithm to support health care professionals addressing developmental concerns in children from birth through 3 years of age.  Extensive screening tool information is included:   Identifying Infants and Young Children With Developmental Disorders in the Medical Home: An Algorithm for Developmental Surveillance and Screening

Why Screen for ASD?

Early detection and early treatment are key to effective treatment of ASD and may lead to

  • Improved language
  • Improved adaptive functioning,
  • Improved social interactions,
  • Fewer behavioral difficulties and
  • Improved outcomes.

Early screening for autism is recommended by the American Academy of Pediatrics (AAP) and the Centers for Disease Control (CDC), both of whom support the early use of standardized general developmental screening tests as well as the use of autism-specific screening tests at 18 and 24 months of age. Visit AAP.ORG for policy statements, additional information and resources supporting these recommendations.

D-PIP
(Devlopmental Surveillance and Screening Policy Implementation Project) Screening Tool Grid – This site provides a grid outlining screening tool options for general developmental screening as well as autism specific screening.  The grid provides a description of each tool, applicable age range, number of Items,  administration time,  psychometric properties, a scoring method,  cultural considerations, purchase/obtainment information and key references.

 

Fostering Partnership and Teamwork in the Pediatric Medical Home:  A "How To" Video Series - Transforming a pediatric practice to the medical home model of care can be a complicated process. With the release of three new instructional videos, the National Center for Medical Home Implementation (NCMHI) aims to make that transformation easier and more understandable. These free videos show pediatric practices and their teams how to create efficiency through team huddles, how to build a stronger medical home through family advisory groups, and how to enhance collaboration with families through care partnership support. Each video describes the strategy, reviews the benefits, and provides guidance on implementation in a practice setting. All three videos are now available on the NCMHI YouTube channel!

 

M-CHAT - The Modified Checklist for Autism in Toddlers (M-CHAT™; Robins, Fein & Barton, 1999) is an extensively studied and widely used screening tool.  The M-CHAT, a scoring template, and the M-CHAT Follow-up Interview are available for free download for clinical, research and educational purposes.

Developmental Screening/Testing Coding Fact Sheet for Primary Care Pediatricians  

 

Learn the Signs.  Act Early. - The Centers for Disease Control and Prevention (CDC) National Center on Birth Defects and Developmental Disabilities (NCBDDD), in collaboration with a number of national partners, coordinate the Learn the Signs. Act Early. campaignThis campaign aims to educate families and professionals about childhood development, including early warning signs of autism and other developmental disorders, and encourages developmental screening and  intervention. 

 

The National Center for Medical Home Implementation - This resource is for health professionals, families, and others interested in creating a medical home for all children and youth.   In addition to other resources, an E-Newsletter, Medical Homes @ Work is available. 

 

Implementing Developmental Screening  - This page, a component of the National Center for Medical Home Implementation, links to a variety of information and resources to assist providers in the implementation of developmental screening and other medical home initiatives.

 

MICS – MICS is Mississippi’s Integrated Community Systems for Children and Youth with Special Health Care Needs and Their Families and is a project of The Institute for Disability Studies.  MICS is working to create a system of family-centered, community-based, culturally competent services and supports for children and youth with special health care needs in Mississippi.

 

Family Support

A Parent's Guide to Autism Spectrum Disorder - This guide produced by the National Institute of Mental Health provides information on signs, symptoms, causes, diagnosis and treatment of autism and may be useful to families.

Family Access to a Center of Excellence for Support Services (FACESS) - FACESS is a one-stop family support center linking families of children with developmental disabilities with their community.  In addition, an Autism Support Group is offered as a part of this project.

Family-to-Family Center - Mississippi's Family-to-Family Health Information and Education Center is a family-focused, family-managed resource center that empowers families of children with special health care needs to be partners in decisions concerning the health of their children.

First Stop Family Support Center  - First Stop is a program to support military and veteran families who have a child with a developmental disability.

Toilet training for children with autism or intellectual Disabilities This book, written by Sue Bettison, Ph.D. will assist parents of children with autism or intellectual disabilities to achieve independent toileting.  The book is available for purchase at www.learn2do.net for $28.50.

Additional Links/Resources

Autism Spectrum Disorder Information - This CDC site contains valuable general information about autism including facts, screening, treatment and research.

Identification and Evaluation of Children with Autism Spectrum Disorders- This report addresses background information, epidemiology, diagnostic criteria, early signs, neuropathologic aspects and etiologic possibilities relating to autism spectrum disorders.

Management of Children with Autism Spectrum Disorders - This clinical report from the American Academy of Pediatrics was developed to assist pediatricians in educating families and guiding them toward empirically supported interventions for their children.  The report reviews the educational strategies and associated therapies that are the primary treatments for children with autism spectrum disorders.

Pediatrics Supplement that covers HRSA’s Autism Research Grants

The following references were shared with MACSS by the CoBalt (Community Based Autism Liaison and Treatment Project) at the University of Arkansas for Medical Sciences.  Information about the CoBalt project

Boyd, B., Odom, S., et al.  Infants and Toddlers with Autism Spectrum Disorder:  Early Identification and Early Intervention.  Journal of Early Intervention, Volume 32, Number 2, March 2010, pp. 75 – 98. 

Buie, T., Campbell, D., et al.  Evaluation, Diagnosis, and Treatment of Gastrointestinal Disorders in Individuals with ASDs:  A Consensus Report.  Pediatrics, Vol. 125, Supplement 1, January 1, 2010,  pp. S1-S18. 

Coplan, J. Counseling Parents Regarding Prognosis in Autistic Spectrum DisorderPediatrics, Vol. 105, No 5, May 1, 2000.  pp. e65. 

McPheeters, M., Warren, Z., et al.  A Systematic Review of Medical Treatments for Children with Autism Spectrum DisordersPediatric, Vol. 127, Number 5, May 1, 2011, pp. e1312-e1321 - This item requires a subscription.

Warren, Z., McPheeters, M., et al.  A Systematic Review of Early Intensive Intervention for Autism Spectrum DisordersPediatrics, Vol. 127, Number 5, May 1, 2011, pp. e1303-e1311 - This item requires a subscription.