Mississippi Integrated Community Systems Resources
NOTE: This page is no longer being kept up to date but has been kept to preserve the valuable information that could prove to be useful.
HEALTH AND HEALTHY LIVING
Being a Healthy Adult: How to Advocate for your Health and Health Care
Children Medical Program, Mississippi State Department of Health
Curriculum on Abuse Prevention and Empowerment (CAPE)
Does it Run In the Family
This advocacy health tool helps create personalized booklets to start conversations about family health history. Through these customized booklets, information is provided about individual’s risks’ for specific diseases, as well as information to help healthcare providers diagnose conditions.
Healthcare Transition Training
This site provides health-related training, resources, and information for those who are transitioning to various life stages such as from high school to college and/or work.
HRSA Maternal and Child Health
The Health Resources and Services Administration provides an array of information. The Website lists training opportunities and publications. In addition, program information is provided by each state with an easy to use search engine.
Kids as Self Advocates (KASA)
KASA models leadership and the power of self-advocacy. They are active in schools, communities, families, and places of employment. On their Web site, they provide real life stories told by youth and young adults with disabilities, as well as links to other organizations and agencies that can provide information about health. Stories include surviving a doctor’s appointment, keeping a health diary, switching to an adult doctor, and more.
Kids Health-For Teens Section
The teen health section of Kids Health.org provides information on health related issues for teens and young adults.
Making Connections: Medicaid, CHIP, and Title V Working Together on State Medical Home Initiatives (PDF)
The National Academy for State Health Policy is an independent academy of state health policy makers working together to identify emerging issues, develop policy solutions, and improve state health policy and practice. This is a report on state medical home initiatives by the academy.
HealthVault is a trusted place for people to organize, store, and share health information online. It allows individuals to access important health information about their family, track prescriptions, manage chronic conditions and lab tests, as well as the option to connect with a health provider. Individuals can decide what information goes into their vault and can control who is able to see and use that information.
Mississippi’s Family to Family Health Information and Education Center
Mississippi's Family-to-Family Health Information and Education Center is a family-focused, family-managed resource center that empowers families of children with special health care needs to be partners in decisions concerning the health of their children. Through project activities, the F2F Center works to enable families to be knowledgeable, comfortable and competent in addressing the Title V system with regard to their child’s unique health care needs as well as advocating for ongoing and continuous quality improvement.
National Alliance on Mental Illness (NAMI)
NAMI is a national nonprofit, grassroots, self-help, support and advocacy organization of consumers, families, and friends dedicated to improving the lives of individuals and families affected by mental illness.
National Center for Medical Home Implementation
The National Center for Medical Home Implementation provides resources for health professionals, families, and anyone interested in creating a medical home for all children and youth.
National Center on Physical Activity and Disability
The National Center on Physical Activity and Disability provides information and resources to assist individuals with and without disabilities in maintaining a healthy lifestyle.
National Public Radio Stories
This link provides inspirational stories of families who are fighting to care for their children with disabilities at home.
Statewide Parent Advocacy Network (SPAN) Family to Family Health Information Center This Web site provides information on understanding the new health care reform law and how it impacts children. It also includes links to helpful healthcare materials such as information on choosing your doctor, pre-existing conditions and emergency care.
Students Living with a Genetic Condition: A Guide for Parents (2010) (Parent Guide) Developed by the National Dissemination Center for Children with Disabilities (NICHCY), this guide provides information that may be helpful when writing a letter to or preparing to meet with a student’s teacher, school nurse, and physical education teacher or coach. It may also be a useful resource for bus drivers, babysitters, church leaders, or any other potential caregiver of a child with a disability.
The Catalyst Center: Improving Financing of Care for Children and Youth with Special Health Care Needs
The Catalyst Center creates publications and products, answers technical assistance questions, researches innovative state-based financing strategies, guides stakeholders to outside resources, and connects those interested in working together to address complex health care coverage and financing issues.
The National Center For Cultural Competence (NCCC)
The mission of NCCC is to increase thecapacity of health care and mental health care programs to design, implement, and evaluate culturally and linguistically competent service delivery systems to address growing diversity, persistent disparities, and to promote health and mental health equity. The Website contains resources from self-assessments, process and instruments to promising practices, policy briefs and distance learning features.
The Parent Advocacy Coalition for Educational Rights (PACER) Center
The Parent Advocacy Coalition for Educational Rights (PACER) Center and the National Endowment for Financial Education® (NEFE®) collaborated on this publication for parents of children under the age of 18 who have disabilities. It is a simple, straightforward resource to help manage money, and plan for the future financially and overall. The financial management techniques presented here can help not just in times of crisis, but lifelong.
e-Buddies is an email friendship program for people with and without cognitive disabilities (age 12 & up). e-Buddies is an e-mail pen pal program that pairs people with intellectual and developmental disabilities in one-to-one e-mail friendships with peer volunteers who do not have intellectual or developmental disabilities.People are matched on age, gender, and common interests. The site is free for persons with intellectual and developmental disabilities and anyone under the age of 18.
Guideposts for Success for Youth
Guideposts for Success assists youth with disabilities in developing individualized plans for education and employment and service strategies as required by the Workforce Investment Act.
National Youth Leadership Network (NYLN)
NYLN is a youth-led organization. They work to build power among people with disabilities between the ages of 16- 28 years old. The NYLN promotes youth leadership development, values inclusion, interdependent support systems, and disability pride, works to create access to the resources youth need to be leaders, supports work being done by youth activists with disabilities on the local level, trains youth with disabilities, and connects youth leaders with opportunities to serve and be active members of their communities.
Software Resources and Advice
This Web page is designed to be a resource listing of free or inexpensive assistive technology resources.
STEP UP to Leadership Notes
The Forum for Youth Investment
The Forum for Youth Investment is a nonprofit, nonpartisan organization dedicated to helping young people become ready by age 21 for college, work, and life. This organization provides youth with information, technical assistance, training, network support, and partnership opportunities needed to increase the quality and quantity of youth investment and youth involvement.
Transition Coalition provides online information, support, and professional development on topics focusing on the transition from school to adult life for individuals with disabilities.
Youthhood assists youth as they explore their community and build a future.Resources and information are provided to help plan for college, work, and future aspirations.
Youth Transition Toolkit: A Guide for Young People with Disabilities Transitioning to Adulthood
Developed in partnership with young people, the toolkit is designed as a how-to guide for young people with disabilities on preparing for transition to adulthood and making choices about their own health care, education, employment, finances, independent living, and social and recreational activities.