Institute for Disability Studies
Family 2 Family
The Mississippi Family 2 Family Health Information and Education Center (MS F2F) is
a family-focused, family-managed program that works to empower the families of children
and youth with special health care needs (CYSHCN) to be partners in the decisions
made concerning the health of their children.
What does MS F2F do?
- Disseminates information through one-on-one consultations or group training, and technical assistance to support families of CYSHCN as well as the healthcare professionals who serve them
- Mentors families via one-on-one contact by locally (601.432.6929) or toll free (1.866.883.6929)
- Provides information and resources to families, via website and social media
- Encourages collaborations between families and professionals within the state
- Assists families to make well-informed decisions about their child(ren)’s health care and be well equipped to participate in systems building activities in their local communities and in Mississippi
- Holds trainings for families on advocacy and the six key measures of quality health care
- Distributes tip sheets highlighting strategies for collaboration between families and professionals, information about the Affordable Care Act and the six key measures of quality health care
- Infuses the philosophy of family-centered care, family professional partnerships and cultural and linguistic competence in all activities or projects
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For more information, contact Parent Consultant Keishawna Smith at 1.866.883.4474 or ksmith@ihl.state.ms.us.
Institute for Disability Studies
The University of Southern Mississippi
3825 Ridgewood Road
Jackson, MS 39211
(601) 432-6929
Fax (601) 432-6974
Mississippi
A Focused Brain offers a clinically proven drug free treatment for children and adults.
Children's Medical Program, Mississippi State Department of Health
CMP provides medical and surgical care to children with chronic or disabling conditions.
This service is available to state residents up to 20 years of age who qualify based
on family income, family size, and estimated cost of treatment. Conditions covered
include spina bifida, cerebral palsy, cleft palate, seizure disorders, cystic fibrosis,
sickle cell anemia, hemophilia, hydrocephalus, orthopedic problems (other than from
accidents), congenital heart problems requiring surgery, and intestinal or urinary
defects requiring surgery.
Children's Psychiatric Solutions provides child and adolescent mental health services.
Disability Rights Mississippi promotes, protects and advocates for the legal and human rights of all individuals with disabilities.
Dubard School for Language Disorders serves individuals with communication disorders and reading disabilities, including dyslexia, through services including full-time enrollment, out-client therapy, after-school programs, evaluations, resource/referrals and professional training.
LIFE of Mississippi, Inc.
Living Independence for Everyone (LIFE) is a center for independent living under
Title VII, Part C of the Rehabilitation Act. A non-profit organization dedicated to
enhancing the lives of individuals with significant disabilities in Mississippi, LIFE
has been in existence since October of 1993 and has provided core independent living
services to more than 30,000 individuals with disabilities throughout the state.
Magnolia Speech School focuses on listening and spoken language for children who are deaf, hard of hearing, or communications disordered.
Mississippi Children's Home Services offers clinical services, school-based consultation, parent training, teacher training, and comprehensive psycho-educational, and behavioral assessments.
Mississippi School for the Blind provides home-based early intervention services for children under 3 years of age as well as day student and residential services for school-age children.
National
Cerebral Palsy Guide
provides free educational materials, financial options and support to help those
across the country affected by this disorder.
CHADD: Children and Adults with Attention Deficit Hyperactivity Disorder
Is a national nonprofit providing education, advocacy and support for individuals
with ADHA.
Exceptional Children's Assistance Center
ECAC is North Carolina's Parent Center and is committed to improving the lives and
education of ALL children. Established in 1983, ECAC offers a variety of projects
and services designed to meet the needs of NC parents, families, students, educators,
and other professionals.
Family Voices
Family Voices aims to achieve family-centered care for all children and youth with
special health care needs and/or disabilities through a national network that provides
families with tools to make informed decisions, advocate for improved public and private
policies, build partnerships among professionals and families and serve as a trusted
resource on health care.
PACER Center
PACER Center is a parent training and information center for families of children
and youth with all disabilities from birth through 21 years old. Located in Minneapolis,
it serves families across the nation, as well as those in Minnesota.
Maternal and Child Health Bureau
A bureau of the Health Resources and Services Administration, U.S. Department of
Health and Human Services, the Maternal and Child Health Bureau was established as
the Children's Bureau in 1912. In 1935, the U.S. Congress enacted Title V of the Social
Security Act, which authorized the Maternal and Child Health Services programs and
provided a foundation and structure for assuring the health of American mothers and
children.
The National Survey of Children with Special Health Care Needs, Chartbook 2009-2010
Children with special health care needs (CSHCN) are defined by the Department of
Health and Human Services, Health Resources and Services Administration, Maternal
and Child Health Bureau (MCHB) as: "...those who have or are at increased risk for
a chronic physical, developmental, behavioral, or emotional condition and who also
require health and related services of a type or amount beyond that required by children
generally." This survey, released in 2013, provides detailed information on the prevalence
of CSHCN in the nation and in each state.